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For Cancer Survivors

Living as a Lung Cancer Survivor

For some people with lung cancer, treatment may remove or destroy the cancer. Completing treatment can be both stressful and exciting. You may be relieved to finish treatment, but find it hard not to worry about cancer growing or coming back. This is very common if you’ve had cancer.

For other people, lung cancer may never go away completely. Some people may get regular treatments with chemotherapy, radiation therapy, or other therapies to try to control the cancer for as long as possible. Learning to live with cancer that does not go away can be difficult and very stressful.

Follow-up care

If you have completed treatment, your doctors will still want to watch you closely. It’s very important to go to all of your follow-up appointments. During these visits, your doctors will ask if you are having any problems and may do exams and lab tests or imaging tests to look for signs of cancer returning or treatment side effects.

If you have completed treatment, your doctors will still want to watch you closely. It’s very important to go to all of your follow-up appointments. During these visits, your doctors will ask if you are having any problems and may do exams and lab tests or imaging tests to look for signs of cancer returning or treatment side effects. 

For all lung cancer survivors, it's important to let your doctor know about any new symptoms or problems, because they could be caused by the cancer coming back or by a new disease or a second cancer.

Doctor visits and tests

In people with no signs of cancer remaining, many doctors recommend follow-up visits (which may include CT scans and blood tests) about every 3 months for the first couple of years after treatment, about every 6 months for the next several years, then at least yearly after 5 years. Some doctors may advise different follow-up schedules.

Ask your doctor for a survivorship care plan

Talk with your doctor about developing a survivorship care plan for you. This plan might include:

- A suggested schedule for follow-up  exams and tests

- A list of possible late- or long-term side effects from your treatment, including what to watch for and when you should contact your doctor

- A schedule for other tests you might need to look for long-term health effects from your cancer or its treatment

- Suggestions for things you can do that might improve your health, including possibly lowering your chances of the cancer coming back

Keeping health insurance and copies of your medical records

  • Even after treatment, it’s very important to keep health insurance. Tests and doctor visits cost a lot, and even though no one wants to think of their cancer coming back, this could happen.
  • At some point after your cancer treatment, you might find yourself seeing a new doctor who doesn’t know about your medical history. It’s important to keep copies of your medical recordsto give your new doctor the details of your diagnosis and treatment.

If the cancer comes back

If cancer does return at some point, your treatment options will depend on where the cancer is, what treatments you’ve had before, and your health. Surgery, radiation therapy, chemotherapy, targeted therapy, immunotherapy, or some combination of these might be options. Other types of treatment might also be used to help relieve any symptoms from the cancer.

If the cancer comes back

If cancer does return at some point, your treatment options will depend on where the cancer is, what treatments you’ve had before, and your health. Surgery, radiation therapy, chemotherapy, targeted therapy, immunotherapy, or some combination of these might be options. Other types of treatment might also be used to help relieve any symptoms from the cancer.

Giving back to the lung cancer community

Not everyone makes it to the level you have already made. Be grateful for the new life and look at the brighter side of the cancer continuum.

There is no better satisfaction in the world than “giving”. If you have survived lung cancer, its your chance to give back to the society.

Look around and find out the most interesting way you would like to contribute to the lives of lung cancer patient. Choose your own path and make a difference.